I have recently FINALLY started to read "The Mask of Benevolence" by Harlan Lane. Ha yes I should have read this a long time ago, I guess I'm just behind on that sort of thing, but I'm catching up now! :)
I am not finished reading yet. I started like 3 days ago and am about 3/4 done? I'm really was curious what your thoughts are about this book? It is obviously slightly out of date when it comes to the views of the Deaf community. I felt that Lane painted a picture of how all Deaf people did not want to have implants or aids, which is obviously not the case, but I am aware that the community has become much more accepting about implants in the last decade. Also, i felt as if he made it seem that unless the deaf child was raised using ASL, the child would not be successful. He kept saying that the lucky 10 percent of the deaf people who have a good education are the lucky ones who grew up using ASL. I don't know how accurate that is, but obviously he has much more data than I do! But I know that I have met some oral deaf people and they are intelligent and got through school rather well even though they were taught orally. Same with deaf kids who grew up using Signed English [like myself]. Then there are the native ASL signers that I have met who are extremely intelligent as well! I think what is the real issue here though, as Lane also mentioned in one way or another, is that a child obviously needs some sort of language at home before the child starts school. Any sort of language is better than none, right? Another issue is that obviously if the child was raised for its first 5 years in ASL, and then ends up at a school that only teaches orally or in Signed English [and whatever else], the child is basically screwed for the first couple years as they struggle to convert from ASL to Signed English or oralism [if they ever succeed, i would imagine it's easier to convert from ASL to Signed English, than it would be to convert from ASL to oralism], and that in turn interrupts the education part of school. I was lucky in my case because I grew up using Signed English and then went to school using an interpreter who used Signed English so i did not have any problems when it came to adjusting from home to school.
I do however support ASL to be taught in school [deaf schools and mainstream via ASL interpreters], and do actually wish I was raised using ASL, but I wasn't. That's life, i don't hold any hard feelings against my mom for choosing Signed English over ASL. She at least wanted me to have a language [which was English obviously], and worked very hard on that. I'm very thankful to my mom, and even more so when i realize that there are parents out there who do not make the effort to communicate with their child, and just let the child spend it's first 5 years mostly language-less until it's time for school and figure that the school for the deaf can deal with the child. When i think about this, i feel very incredibly lucky to have a parent who cared!!
Back to the book, i also felt as if Lane was saying that being mainstreamed did not help the deaf child at all, and that they would not be able to be successful. I disagreed as I am a product of mainstreaming. It has it win and lose situations.. I had access to really good education, but i did not have full access to socialization. Which is most important? It's a tough one really, because socialization is so important to a child, it teaches the child a lot of things that will stick with them as they grow up. I strongly feel that my social anxiety is something that came from being mainstreamed. Although, obviously a deaf child would generally fail while being mainstreamed if they did not at least have an interpreter [or note-writer, CART and whatever, although i prefer interpreters by far, kind of curious about CART, never used that before]. I just felt that it was not completely accurate to declare that mainstreaming a deaf child was a bad thing. Reading through this book, i kind of felt that he did not mention people who grew up the way I did, and just focused on black and white, the successful ones who were schooled via ASL, and the unsuccessful ones who were not schooled via ASL. Where is the gray area?
I'm not finished yet so, we shall see what else i read! Overall, i am enjoying the book, it has a lot of information that i did not know or gave too much thought on, it's definitely good food for the brain. But I have to say i disagree with some of the things he writes about.
It has been interesting reflecting on how the hearing society in general tries to 'fix' deaf people. He definitely provides A LOT of information on this and it is actually refreshing to realize that Lane is a hearing person and yet thinks like this. Obviously implants do not 'fix' deaf people, and one can still be culturally Deaf and wear implants. I kind of felt as if Lane was saying that deaf people who wear implants and so on are a product of the audists attempt to fix deaf people and... that gives me a bad taste in the mouth... Because obviously we can think for ourselves, if we choose to have an implant, it's generally not because we're doing what 'they' want us to do, we're doing it because we want to. It's 2006, we have access to the internet, we can do our own research, we can think for ourselves, and if I ever get an implant, it's only because i want a little assistant in this world I live in, not because i am resorting and submitting to the 'audists'. It is a different story though, of course, for parents who discover they have a deaf baby and do not get access to every point of view. It is unfair for the audiologist to only refer to cochlear implants instead of saying that well, here's your options: you can implant your child, or you can have the child wear aids, and also you should talk to the Deaf community and get their views on what they think would be the best for the child. It is extremely important to have access to every point of view, and it is obvious that parents generally do not receive that, unless they ask for it.
I support implanting deaf babies by the way, if the parents want to do that, go for it. I am unsure if I would do that to my deaf child if i had one... BUT what i do not support, is raising an implanted baby with no sign language [ASL, BSL whatever your country's sign language is] at all. They say that it would 'stunt' the baby's progress, but I don't buy that. Look at all these hearing babies who learn 'baby signs' before they speak. They have no problems learning how to speak like a month or two after signing. My sister learned Signed English before she started to speak, and signing obviously did not interrupt her education and speech. Also i feel that it is very important for the implanted baby to have access to every form of communication: speech AND signing, it will only benefit the baby to have both, also to be FLUENT in sign language as well. That way the child gets to be a part of both worlds. That's the biggest injustice that is done to implanted children as far as I am concerned is that if the child does not successfully master the spoken language, the child will always feel somehow left out in one way or another, and would obviously not be able to be a part of the Deaf community either as the child does not know sign language at all and is in fact told to NOT learn how to sign. That is the injustice, it's not the cochlear implant itself, it's raising the implanted baby with no sign language or knowledge of and involvement in Deaf culture. If the implanted child has access to both spoken and signed language, i think the child will only benefit from that, the child would have access to both worlds.
Anyway, i got off track a bit there heh. I'll save the rest of my comments on this book for next time. I definitely could cover more topics, but this post is getting long enough!
I'm wondering what your views are on this book? Ramble away, feel free to disagree with what i wrote as well. I welcome all points of view. Let's be respectful of each other though okay?
Sunday, December 17, 2006
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16 rants:
Quoting you:
"I kind of felt as if Lane was saying that deaf people who wear implants and so on are a product of the audists attempt to fix deaf people"
Yes, that's exactly what he is saying. I grew up mainstreamed like you did... Signed in Signed Exact English, which is worse than Signed English- and learned ASL at 16. I also grew up speaking and hating myself for being deaf.
Additionally, I had a cochlear implant put in at age 19.
And I am ashamed!
I went to Gallaudet and NTID.
Today, I am an ASL professor at a community college, am married to a Deaf woman (Michele Listisard, also otherwise known as Michele Westfall). We also have a 14 month old Deaf son.
So, that does put me in a position to be able to compare & contrast the realities that exist in the Deaf community.
Today, I use ASL- and refuse to sign in any other languages. I also have stopped acting like a hearing person.
I have read "The Mask of Benevolence", as well as Dr. Paddy Ladd's "In Search of Deafhood", among other such literature works. Also, I have done a lot of reading into audism itself.
The problem here is this:
Why were cochlear implants first created? The answer to that is, there was a need to FIX or CURE deafness itself. Hence, it was invented. Who invented it? A hearing person.
Who pushes it? Audiologists, speech pathologists, and hearing parents.
Do white people tell black people how to rap? Hell, No.
Is it appropriate for a white person to go into a black community and tell them how to speak, how to dress, how to act? HELL NO.
If this is true, how can we tolerate hearing people telling us how to act? How to receive information? How to communicate?
The obvious answer to that: THEY HAVE NO BUSINESS in doing that.
Are there variants of spoken English in America? (Other than regional accents) The answer is NO.
Why are there different sign languages out there? Audism.
Deaf people created ASL, use ASL and live using ASL. It is our native language. Hearing people have no right in saying that ASL is not a language, and they have no right to invent other communication tools.
Signed English, Cochlear Implants, Cued Speech, and oralism are all byproducts of audism. There's no argument with this issue.
Deaf people that continue to use Signed English, use cued speech, wear cochlear implants, and continue to shun ASL- are all byproducts of audism. They were brainwashed to the point where they think like hearing people.
It angers me when a deaf (small 'd') person says "well, I am deaf, therefore I am a part of the deaf community".
The cold hard reality is, you are either a member of the Deaf community, or you are a member of the hearing community. You can't choose. It's one or the other, period.
You can choose to be a member of the Deaf community but still function in the hearing world. There's nothing wrong with that. In fact, that's what our Deaf family does.
You can choose to be a member of the hearing community but still function in the Deaf world as well.
But you cannot be members of both.
How do you differ between these people?
The answer is simple. If a Deaf person accepts that they are Deaf, period... Accepts their NATIVE language, which is ASL and USES it... Doesn't tolerate audism... Has a journey in life that leads to better understanding of oneself (Deafhood)... THEN you are a member of the Deaf community.
But if you are going to brownnose hearing people, and try to act like them... Imitate them like monkeys do... Like dogs... Want to move your mouth like hearing people but the voice isn't clear at all... Wear hearing aids even though you can't understand crap... Or want to wear a cochlear implant and cry to mom and say "I'm cured... *Sob*..." Then you are a member of the hearing community. Those people are "Fake deaf" people, and quite pathetic.
Unfortunately, there are also some Deaf people that are members of the Deaf community that still sucks up to hearing people. Those are "Uncle Sam" Deaf people. These Deaf people are the ones that tolerate audism, tolerate discrimination, or tolerates a lack of accessibility.
They are the ones that hurts our deaf community the most. They need to stop!
Here's more about audism:
http://www.raa-deaf.org/sandbox1.html
I hope this helps you in your journey of Deafhood.
Best Regards,
Erick Ketcham
The problem is that the medical establishment really does not understand what it is doing. They don't realize the consequences of cochlear implants, and therefore they are unable to communicate the real consequences to parents of deaf children.
Imagine if there were "implants for the retinal nerves" available that created primitive "kaleidoscopic" visual images. Then the medical establishment would say: "Don't worry, because the brain can use those kaleidoscopic images...."... etc, etc.
I think, in that case, people would pause and think: "Wait a minute... The technology is in its primitive stages.... Maybe it's not a great idea...."
The truth is that cochlear implants are not as wonderful as the medical establishment attempts to convey. They create an artificial signal that puts stress on the brain.
How many people have such a terrific and wonderful experience with them? Probably very, very few. It's too risky to the child's psychology, in my opinion. However, there is no risk to the child's psychology in teaching them ASL so that they can have full language capabilities.
I read it half way about 15 years ago. It overwhelmed me with too much of familiarity with what I have seen and known about ourselves.
I do not know the history of CI technology but one thing I do know, CI was created simply for people who wish to regain hearing. It was not targeted to deaf children. In fact, the number of people who lost hearing is far great than the number of deaf children and there are many success stories of hearing people who happily regained their hearing with CI technology. This inevitibly got us.
As a researcher in deaf language development, I follow advances of CI through other researchers who are much into this thing than me. I did read some to know that it works better than hearing aids for those who benefit CI. Many of them profoundly deaf become capable to develop good English speech skills and have been known to be able to use cell phones. Is it right to take this away from them? That is my reaction to Harlane Lane's views. He still hold this view.
It is wise for CI children to learn ASL and be bilingual where they can always have their options to go in both world than to be stuck in between because they happen do not benefit enough from CI, same with HoH children.
About signed English, this is now becoming smaller. More professionals in deaf field take ASL classes in order to get their degrees and continue using ASL because it is a full rich language. Everyone already knows that.
Anne Marie
I do know one thing, when I read posts like Erick's, it drives me away from wanting to learn anything more about ASL and deaf hood.
When I read about ASL from someone who is non judgemental and not bitter, it draws me in.
I do know of people who have wound up staying away from ASL and deaf issues precisely because of the sort of closeminded bigotry and hatred that Erick espouses.
So really, in the end who benefits the deaf community more? Those who draw more people in, or those who drive potential people out?
(this is BEG, it's not logging me in properly today)
Erick, so are you saying that a deaf person who CHOOSES to be implanted even after countless time spent on research and weighting out the pros and cons of the implant etc, and yet still uses ASL, loves and promotes ASL, supports bi/bi education for Deaf children, and is involved in the deaf community... is simply not culturally Deaf? Simply because he wanted to have an implant? Are you suggesting that one who has an implant, or wears hearing aids cannot be a culturally Deaf person?
Come on. That way of thinking is so narrow-minded. Nothing is black and white.
Yes, hearing people did invent cochlear implants because they assume deaf people in general want to be 'fixed'. Yes there are hearing people who think that one should always aspire to be "normal" no matter what. But should deaf people refuse all these techonology that was invented by hearing people in order to 'help' deaf people? I don't buy that. I think it's up to the individual. If the individual wants to be implanted and take speech therapy, it does not make the person any less Deaf. Whenever he goes to sleep, shower, etc, he takes the implant off, and reverts back to hearing basically nothing. Remember it is not the 'deafness' that defines the Deaf culture completely [to me at least]... It is the use and love of ASL [or any other country's sign language, and by that i don't mean signed English, signed French etc but actual sign languages], involvement in the deaf community, knowledge of the history of the Deaf, and the desire to improve education for the deaf [via bi/bi education].
If i ever get an implant, it is NOT because i want to imitate or 'brownnose' hearing people. It is because i want to have an assistant in the hearing world. To be able to hear a car before it hits me. I would even accept speech therapy, why not? But it does not mean that I would abandon my Deaf identity. I would still choose to sign over speak as it is the method of communication that I am most comfortable in. I also do not hold the illusion that having an implant would "cure" me... or make me hearing. That is just not the case.
I think your way of thinking causes more harm to the Deaf community by pointing at Deaf people and calling them 'fake deaf" people. That just causes more problems and Deaf vs Deaf issues in the community and you are doing the whole 'crab theory' whithout even realizing it. There *is* a difference between a deaf person and a culturally Deaf person, yes. But to say that a culturally Deaf person MUST not accept cochlear implants, hearing aids, speech therapy and so on. That's just wrong. We are allowed to think for ourselves. It is ironic how you say that hearing people cannot tell us what to do [which i agree] but you are also saying that deaf people can tell us what to do and cast us out of the community for doing something that you may disagree with. NOBODY should tell us what to do, we should make decisions for ourselves and learn to think for ourselves.
Thank you for your opinion but i disagree with most of the things you say, and am thankful that the majority of the community does not think the way you do.
Hey BEG, yeah i understand how you would feel like that. I get turned off by some people and their extreme way of thinking about what it means to be culturally Deaf. But i always remind myself that there are A LOT of people who are open-minded and realize there are many ways to be Deaf, and what Deaf culture comes down to is essentially the love for ASL [or their country's sign language] and so on.
Also, it is important that we don't turn away from the community because the community NEEDS more open-minded people who are passionate about the Deaf culture and yet at the same time realizes there are many ways to be Deaf and it is important to be accepting. So i think it like this, well by me being a part of the community, that brings one more independant thinking person who makes decisions for herself and embrances diversity in the Deaf community. It would be wrong to think "Ac, wtf are these people thinking? Well if there are some people who think like that, then screw that, i don't want to be a part of that community!" Because it does not solve the problem, we can solve the problem by bringing an additional voice in the community so new people from outside the community and culture can see that not everybody thinks the way that Erick does!
Zoee, you are right. I have a very close friend here in Colorado who has CI for 15 years. I completely forgot that she has it every minute I see her but her beautiful ASL and being totally emanicipated from judgments and pressures. She simply does not give it any damn and is always surrounded by many friends like me with my background from all deaf family and deaf school Md School for the Deaf and Calif School for the Deaf Fremont).
I remember her taking a journey into Deafhood and it was a bumpy road like many one experienced it but fortunately here in Colorado with a smaller Deaf community, we are more acceptable of each others and more geared to use standard language uses, ASL to more English like signing but not like an ugly SEE signingh and some of us envy deafies who have advantage to speak English well.
This friend is going to be my doulas for our second baby birth.
Anne Marie
Let’s not forget that it is a hearing person along with two other people, whose hearing status I do not know, that elevated ASL to the same level of the spoken languages. Their names are William C. Stokoe, Dorothy C. Caterline and Carl G. Croneberg.
It is easy to form a bad habit to reject ideas just because they come from sources that are outside of your sphere. Ideas are not partial to anyone and are free to anyone who wants to use them.
While I can understand some people who think that SEE does not have high aesthetical value, we need to remind ourselves that SEE works for some people and that we should not too be judgmental on them. Some people think that the spoken English language is very ugly and they think that their languages, whatever they are, are prettier than the spoken English language. Does this mean that we should forsake the spoken English language for a prettier language? No, not necessarily.
Joseph Pietro Riolo
josephpietrojeungriolo@gmail.com
Public domain notice: I put all of my expressions in this post in the public domain.
Joseph, I do understand that there are always something certain that works for some individuals. Like one researcher said, deaf children seemingly do develop cognitive flexiblity that they somehow adapt and learn as much as ASL signing deaf children.
I am not for allowing everything to be at free will because of resources, training, and sufficient application on pragmatic - social level. That is how things cave in. Interpreters have to be trained for everything, there are fights over funds where they should be alloted, etc. At the end we become a tower of babel.
Stick to accessible, and highly cognitive mean of communication, that is use of standard language, just like how hearing people enjoy every sec of their lives for granted.
Recently we found Francisco Goya's painting of a very long smooth tree trunk with a small foliage of five pointed leaves. Few children stand by looking up at this foliage, two kids keep on trying to climb toward it.
Anne Marie
Zoee, that's wonderful you are reading Lane's book. I hope you will continue to read rare classics like that and examine them like you did here. I hope there will be more Deaf book clubs all over US to examine every book written about Deaf issues...including Audiology books, special education...those books are sure to bring you to Erick's level.
Please do not be too quick to accuse Erick of bigotry or having anger problems. We need more of comments like his. He's been through a lot. He has every right to make those comments and those comments are not negative nor personal in my opinion.
We need a vision for the Deaf community that upholds Deaf people and children as GIFTS for the whole world as well as for other Deaf people. A vision that is clear of any "benevolence" that strips Deaf people of our confidence, our economy, our ability to unite, our ability to run our own ASL schools like we once did....that is the MASK of BENEVOLENCE....the exploitation of the "hearing loss" industry in name of "helping" us poor Deaf and thus dividing each other---making us react to each other like the comments to Erick's crisp clear points.
Keep on reading...and sharing your thoughts with us all! Well, we all should do the same!!
Ella, I fully support people who do not want implants or hearing aids etc. That is their choice and their right. But to me, what Erick is promoting is the idea that one cannot be culturally Deaf if they want to wear aids or implants. Who is Erick to declare that about culturally Deaf people who are implanted? How does that make the implanted Deaf people feel? It only causes conflict and hurt feelings. Thinking like that is not a positive thing to me. It's one thing to say "Implants are not right for me because of this and that" and it's a complete different thing to say "Any deaf person who chooses to wear implants are not REAL Deaf people!"
That's just wrong and causes more problems in the deaf community as far I am concerned by having people point at eachother and saying that they are not true Deaf people simply bhecause they wear hearing aids or implants.
Yeah implants were created to "fix" us, but we have the right to be culturally Deaf and still want an assistant in this world [aka aids or implants]. To state that to be culturally Deaf, one must not want to wear aids or implants.... that's just upsetting. We should be allowed to make decisions for ourselves and decide what is right for ourselves and still have the right to be culturally Deaf.
Also, question: Who invented sign language? A hearing person or a deaf person?
It is not the invention per se that caused a signed language to come into being. It is more like a process of development of signed language where both hearing and deaf people participated in.
Joseph Pietro Riolo
josephpietrojeungriolo@gmail.com
Public domain notice: I put all of my expressions in this post in the public domain.
I just started this book last night, and I have to admit I'm already grating my teeth over the "You can't be Deaf unless you grew up with ASL in a residential school," etc. The problem is, and will be, that most deaf students are mainstreamed, especially since the passage of the ADA. While I do agree that education with ASL must start as early as possible, that is not where we are now, and since 90% of deaf folk are born to hearing parents and thus more likely to be mainstreamed these days, reaching out to the solitaires and the oral-educated is important, I think.
I'll review the book when I finish it; I need to post a review of Alone in the Mainstream (which you should read when you get a chance, Zoee).
The other thing I'm considering looking into (don't know if there's such a program where I live) is volunteering to mentor a deaf child who is being mainstreamed, esp. another solitaire. I'd like to have some basic ASL before I do that, but I think it would be something I would very much enjoy doing.
BEG, yeah that's what irritated me about this book, but we have to keep in mind, it is out of date. The way the deaf community, the majority at least, thinks quite differently now about people who did not grow up in residental schools or in an ASL signing community. They tend to be much more accepting but i *still* do see certain people calling mainstreamed people "maintsreamed freaks" which just is hurtful... same with calling CI peopel cyborgs.. So ironic, they always feel hurt and upset when people say mean things about them being deaf or growing up in residental schools and yet they then go and lash out on their own people just because they grew up a bit differently or made different choices... Sad.
But i think what the author was trying to focus more on was that an ASL signing Deaf student deserves to be taught in ASL. I don't think he was even thinking about the majority of Deaf kids who did not even have the priveledge of growing up in an ASL signing household. He was mostly trying to fight for the ASL signing kids rights and yadda yadda yadda. It took me a while to realize that i should not expect this author write about any children that represent me in this book because well i did grow up outside of the Deaf culture afterall and i think he's focusing on the children who DID grow up in the Deaf culture which naturally uses ASL?
I really really really want to read Alone in the Mainstream!! I'll have to find a good deal on it as i can't afford a book that costs more than 5 bucks right now heh. Please do review it sometimes, i'm curious to hear what your thoughts are on this book AND Alone in the Mainstream :)
I'm curious. Which edition are you reading?
Hello Zoee,
I realize this is a year on from your review, but I just read the book myself and have to say I agree with everything you say. My opinion about education is that specialist Deaf centres should be established inside hearing schools, so that students who can benefit from mainstream education can do so and learn to live in the hearing world, while support and the Deaf community is on hand to eliminate the isolation and help redress the disadvantages compared to the hearing students; the hearing students will also learn to live with the Deaf...
My own review of the book is at The Deaf Essays; I'd love to know what you think.
BTW, if you look anything like your photographs in real life: you are gorgeous!
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